Participation in studies must be voluntary, and participants must be informed that they may discontinue participation at any time, and for any reason. For students, we require active, documented informed parental consent. In addition, we require student assent for children ages seven and older.
No changes in scope (e.g., time frame of study, number of schools included, number of participants, etc.), procedure, or instrumentation may be made without authorization once a letter of approval has been issued. Requests for amendments must be made directly to the Chair of the Research Review Committee before the proposed changes are enacted.
All state and federal laws must be observed, including the Family Educational Rights and Privacy Act (FERPA), the Health Insurance Portability and Accountability Act (HIPAA), and the Protection of Pupil Rights Amendment (PPRA).
All persons having one or more contacts with one or more students must provide documentation of a background check.
The Principal Investigator or Researcher will notify the Chair of the Research Review Committee should any adverse event(s) occur.
Data agreements between the Principal Investigator or Researcher and the District must be entered into for any case where data is requested from the District. Data received from the District may only be used for approved research and evaluation studies. Use or transfer of the data to another entity will be in violation of District policy and FERPA regulations.
The Principal Investigator/Researcher affiliated with the research must notify the District, in writing, about the intent to submit reports or articles for publication or conference presentations. One electronic copy of the final report must be furnished for the files of Manor ISD.